One week in hospice

Lucy has been in hospice care for a week now. I have had to call their hot line several times. The callbacks are prompt and the person on the other end of the phone line is calming and supportive.

Today has been a quiet day for Lucy and she badly needed the downtime. We have had a number of visitors Saturday, Sunday, and Monday. Tuesday we had the hospice social worker and charge nurse by for almost two hours. After that, Lucy had an aide come out to help her clean up, and then Lucy had an equipment delivery for her new mattress.

Lucy is very nervous about getting out of bed because her blood pressure is low and she gets vertigo. Once the spinning subsides, she is fine. She sat in her wheelchair and enjoyed her sun porch for almost 45 minutes yesterday.

Lucy will have an aide come tomorrow to help her get cleaned up. Her nurse will be by Friday to check on her and she will be seeing a hospice doctor in the next few days. Starting Monday, she will have an aide assigned instead of having different aides. That will help her anxiety a bit.

Lucy is really tired now. She has been waking up about every 90 minutes asking for water. Even though there is a “bubbler” on her oxygen talk, she still gets a dry throat. Lucy doesn’t need oxygen during much of the day so her throat gets a chance to get re-hydrated. The other thing is when Lucy gets really tired now, she can get a little confused. Many of us have experienced brain fog when we have had to pull an all-nighter to two.

Lucy still needs your thoughts and prayers. Her battle is still underway.

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Filed under cancer battle, hospice

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