Lucy had some more visitors today. Our friend Danette, my cousin Julie, and Julie’s husband Dave were also here. We haven’t seen them for a couple of years because of job commitments, and Lucy received a pansy bowl and some oriental lily bulbs for her gardens. Lucy’s cousin Annette and her husband Al were here and dropped off a stunning bouquet. Lucy’s sister Julie came by to see how Lucy was doing. Steve dropped off a small wheeled organizer which Lucy used to put her items in. Suzy came by to give Lucy a leg massage, which was greatly appreciated.
She has been attempting solid food yesterday and today. Steve and Liz brought some beef stew yesterday and Lucy had a little of it. Today she wanted a hamburger and fries from Culver’s and ate a little of them. While she isn’t eating much, it was nice that she seems to have an appetite. She is also using her spirometer today to help keep her lungs clear. At one point she wanted to sit up on the edge of her bed for a few minutes. She is sleeping better and her abdominal pain has been manageable without pain meds.
She does have periods of extreme fatigue. Her throat is still sore despite Popsicles and throat drops. The soreness was because of the oxygen she was on at the hospital. She hardly needs oxygen here at home. Her bouts of hiccups still occur and require Thorazine, which makes her really foggy for a couple of hours.
Lucy’s hospice case manager will be here tomorrow. We’re looking forward to that meeting. I’m hoping we can set a schedule for the week.
Thank you, everyone, for all your love and support!
Lucy was nervous about coming home. In the hospital, you can press a button and have someone there to help. At home, she has me. The people in the hospital obviously have had many hundred hours more patient care training care than I have had. However, her hospice care case manager met with us on Friday before she got discharged and covered everything very thoroughly. One of the hospice nurses met us at the house with her medications, gave me some charting forms, and walked me though each of the drugs.
Diane and my parents were with us at the hospital on Friday. Once we had a firm time set up for the equipment delivery, my parents went to our house to let the delivery people in. Lucy’s siblings came over to visit after she got home.
Today was a very busy day for Lucy. A hospice nurse, Ann, came by to check on Lucy. Ann’s father is in hospice battling gastroblastoma so Ann is aware of the hiccup problem Lucy is having. She also had some suggestions for Lucy and had a couple more prescriptions sent via courier to our house.
Lucy is getting a bathing and massage service twice per week. After Lindsay came by today, Lucy wants to increase it to three times per week. It was so nice for Lucy to get pampered for 45 minutes and she was beaming afterwards.
Lucy’s siblings and her dad visited her this afternoon. We had a very nice dinner together. Lucy had some spaghetti and some chocolate cake. We celebrated Steve’s birthday a couple of days early. Diane stopped by earlier in the afternoon for a bit. It was nice to help Diane celebrate her birthday today.
Lucy has not needed oxygen today. She wanted it on a very low setting tonight. She is still having issues with hiccups, so her Thorazine dose got adjusted upwards slightly. That is working. She has not had much abdominal pain today except for the hiccups.
Lucy is still really tired. Her throat is a little sore from being on oxygen in the hospital. She has been using Halls Breezers to help with that. She also has some Popsicles and Jell-O to help soothe her throat.
Thank you so much for caring for us! I hope these blog posts have helped show everyone what an amazing woman I married. She is the true embodiment of a life worth living. Her strength, courage, and dignity are an inspiration. My hope is when it is my time to transcend this existence that I will follow Lucy’s example.