Category Archives: family

“You put your left leg in, you put your left leg out…”

The weather was supposed to be very challenging today. The Twin Cities was under a Winter Storm Warning due to anticipated heavy snow, sleet, freezing rain and high winds. As the morning went on, the storm shifted farther to the north. The Warning was then downgraded to an Advisory. As of this writing, it is raining hard. There is still a chance of freezing rain tonight and a chance of a couple of inches of snow tomorrow. The day had an unexpected turn of events, but it was in our favor.

Lucy’s day had an unexpected turn of events, but in her favor. Marynne from Minnesota Oncology visited with her this morning because Dr. Thurmes was unavailable. Lucy’s leg is improving very slowly. Dr. Nashawaty feels that since Lucy had not had a nosebleed in several days, perhaps the TPA catheter option is available.

Her next visitor was Dr. Dittes, an Infectious Disease specialist. He felt that Lucy may have cellulitis but acknowledged to her that her blood cultures and blood tests show no obvious indication of a bacterial infection. He also told her that her blood clots could be the majority of the fever spikes and redness. He changed the antibiotic she was on to two different IV antibiotics. There is no cause for concern.

Marynne came back a bit later. She was going to see if Interventional Radiology wanted to do the TPA procedure. The best guess was that Lucy would have it done tomorrow morning. They had time today and got to her about 1:30 this afternoon.

The procedure went very quickly. They completed it by 2:45. There was a very large clot in her thigh. The clot in her calf was small enough that they were going to let nature take its course. Her left leg was less clogged than her right leg was a couple of weeks ago. We hope that means she will not need subsequent procedures and her recovery time will be shorter. It will be a couple of days before she will be able to do the Hokey Pokey.

Of course having the procedure means she also moved from 8th floor to 3rd floor. The first move was into a two bed room. She moved again about 20 minutes later to a private room.

Her evening is winding down now that there isn’t as much activity. She knows sleeping will be tough tonight because they have to wake her every two hours to do a neurology check. Lucy talked to Diane and Julie on the phone tonight and that helped brighten her day. I found the beaded owl pictured below in the gift shop. It is beaded and stands about 6″ tall.

Here’s hoping Leap Day goes well for her. We wish all of you a good evening and have a Happy Leap Day tomorrow!

beaded owl

Lucy’s newest owl friend

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Filed under cancer battle, DVT, family, friends, hospital, music, weather

Land of transfusion

Lucy’s hemoglobin was at 6.0 and her platelets were at 50,000. Dr. Nashawaty had rounds this weekend and he mentioned the irony of keeping Lucy on heparin but also having to transfuse platelets. Her Alimta treatment probably caused the platelet count drop and to her low hemoglobin level.

On the plus side, her heparin is in therapeutic range. She will be in the hospital until at least tomorrow. One of the criteria for release is getting her off IV heparin. Our guess is they would also like to see any risk of infection in her leg eliminated and a noticeable improvement in her leg. It appears her leg is getting a little better. Like her last hospital stay, this will be a day-by-day event.

Today saw a steady stream of nurses and nurse’s assistants in and out of her room. Lucy said one of her arm blood draws was at 3:00 am this morning. Her port has heparin in it so certain blood tests must be done via her arm.

Lucy’s appetite is still good. I went to the cafeteria and picked up a grilled chicken sandwich for lunch. She asked to sample it and wound up eating the whole thing.

Steve and Liz came by this morning and brought cookies. Suzy was by this afternoon and left a stuffed snowy owl and a couple of magazines. Julie called to see how Lucy is doing. We also appreciated all the great notes from everyone. Lucy and I do read the comments left in the group or in the blog, and we thank everyone for their words of encouragement.

We’re hoping her heparin stays in therapeutic range tomorrow. That will put her one step closer to going home.

scrub top

I found this scrub top in the gift shop. Lucy wants to see it when she is more mobile. I’m sure she will get one.

snowy owl

Suzy brought along a new friend for Lucy

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“There will be Blood”

This morning started with a 75-minute nosebleed. Lucy was to start using Afrin nasal spray but her bleeding started moments after the first spray. She then switched over to a saline gel. Diane visited Lucy this afternoon. It really helped Lucy’s mood. Diane can get Lucy laughing which is really needed now. Thank you, Diane! She also suggested the title for tonight’s post (it was originally “Let It Bleed”). Between the nosebleed and the blood draws, Lucy could have supplied the blood for this season of “Dexter”.Lucy is still running a temperature of around 101°F. They are running an IV antibiotic and she is getting Tylenol for her temp. They also drew blood to see if her blood thinner dose needs adjusting. Blood thinners are very touchy. Then they drew blood again looking at her Heparin Factor A, and then drew a third time for blood cultures (again). She also received two large heparin bolus doses.

It sounds like Suzy is going to visit Lucy tomorrow. Unfortunately, when Suzy called tonight, Lucy had a lab tech wrapping a tourniquet preparing for a blood draw and two nurses reviewing the heparin bolus double-check and co-signing procedure. Things do get a little hectic in the hospital.

Keep Lucy in your thoughts and prayers tonight. Thank you for all your support!

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Down to once per day

We started today with about two inches of snow. That is normally boring news but this has not been a typical winter. The snow was like the mashed potatoes served in the school cafeteria. The snow blower had problems with it because the discharge chute kept plugging. I think the snow lovers might be disappointed with the sloppy stuff, too.

Lucy’s leg puffed back up a bit by almost 2 cm though her pain is about the same. She is really run down today. We had suspected her hemoglobin was dropping and it has. She is at 6.8. Her two-unit transfusion will occur tomorrow at 7:30 am. It will probably take four hours to complete.

She also has to change her injection schedule before the next labs. We were targeting her injection for around 6:00 pm. This would avoid conflicts with work schedules, dinner, and TV. Now she is to get her injection at 11:00 tomorrow and work towards 10:00 by Monday’s lab appointment. The lab appointment also moved to 4:30. Of course, she’s going to be at Fairview Southdale IV Therapy at 11:00 tomorrow.

One thing we are happy about is she is down to daily Lovenox injections rather than twice daily. We also enjoyed Julie’s stew tonight. OK, enjoyed is an understatement; devoured is more like it.

Here’s hoping we have a dull and boring day tomorrow.
 

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Tomorrow will be a better day

Lucy couldn’t visit her dad today. Her thigh was too painful. This happened the last time she had a clot in her left leg. The good news is her calf diameter was almost a full centimeter smaller and the erythema is almost gone. Her right calf diameter also was 0.8 cm smaller.

It is astonishing at how painful a blood clot is. Her clots are maybe the diameter of a single piece of couscous. At times, she rates the pain as worse than her post-surgical pain. I’m hoping her leg pain is better tomorrow.

I visited her dad today. On my way there, I saw three bald eagles soaring over Highway 100 at Minnehaha Creek. He’s in pretty good spirits and enjoyed having company. Suzy and Steve also came by. Lucy’s family has treated me so well through the years and I enjoy being with them. I’m very lucky because I know too many people who have issues with their in-laws.

Her first Lovenox injection went well today and her second one was OK. I am either getting the hang of it or she’s learning to lie really well (just kidding!). I picked up one of her favorites from Qdoba on my way home tonight. That helped brighten up her day.

Lucy’s next blood testing will be on Tuesday. She was originally scheduled for one test on Monday and another test on Tuesday, but the two blood tests are combined now. We can’t wait for Tuesday because that is when her Lovenox cuts back to one injection per day. It appears she will be receiving injections for at least 30 more days. I do hope that she eventually goes back on Coumadin.

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