Category Archives: cancer battle

“OK…just a little pin prick…”

Lovenox was not what the lyric snippet from Pink Floyd’s “Comfortably Numb referenced. Lucy survived my first injection attempt and I still have all of my nine fingers. We found some advice on the Lovenox web site along with a handy PDF to help with the injections. We’ll be glad when Tuesday gets here. She gets reduced to once per day starting Wednesday.

Lucy has her appointments scheduled for the next three weeks. I think the phone got a workout today.

Lucy’s left leg looks better than yesterday. The erythema is smaller and a bit less red. Her right leg is back to normal except for some flaking skin. We took measurements of both calves so we have a reference point as was suggested by Dr. Thurmes. I’ll be taking twice-daily measurements until her leg gets better.

Lucy’s dad had minor surgery this afternoon. His surgery got bumped for an emergency, so it started at 3:00 instead of 11:00. Lucy had a Neulasta shot appointment at 4:30 so we couldn’t make it to the hospital tonight. She remembered how out of it she was when coming out of general anesthesia, and how it was nice that people cared, but she would rather had some time to get reoriented and rest up. We’re going to visit him tomorrow. It sounds like he might be getting released tomorrow late afternoon.

It was a very nice day outside today. We hope you had a chance to enjoy it.

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Filed under cancer battle, DVT, family

Stop me if you’ve heard this before…

We fretted about today’s oncologist visit, but Lucy’s left leg stole the spotlight. We did not even get a chance to discuss the PET scan or CA125 level. Her rash is an erythema and is a sign of a blood clot. Her leg also ballooned up this morning.

Lucy did get her Alimta treatment, so something went right. She can take her multivitamins instead of the prescription folic acid since the multivitamins contain the requisite 400 micrograms folic acid. Lucy’s next vitamin B12 injection will be during her next treatment in three weeks.

She was supposed to visit Dr. Thurmes tomorrow, but he saw her while she was getting chemotherapy. Lucy had an ultrasound on her left leg at Suburban Imaging at 6:30. As a precaution, Lucy will be getting twice-daily Lovenox injections for a week followed by daily injections for around six months. Her Coumadin was stopped immediately.

We had about 45 minutes between the end of chemo and the ultrasound, so we had a quick dinner at Leeann Chin’s about eight blocks from Southdale Medical Building. The Heartland Cafe in the medical building closed several months ago and a Subway is supposedly going in to replace it.

The ultrasound confirmed multiple clots in her left leg. However, she was not admitted to the hospital. We’ll find out more tomorrow. Apparently, the belief is the Lovenox will work on the clots such that she won’t require hospitalization or TPA catheters.

I will be administering the injections. It looks like the syringe has a short small-bore needle. Lucy has no abdominal fat remaining because it got removed in her de-bulking surgery. The “tummy poke” is best for her, so I must be careful. It’s funny, I could probably give injections to anyone else, myself included, but the thought of giving Lucy a shot worries me. I know it’s irrational.

So yes, you’ve heard the blood clots stuff before. Believe me we hate reruns, too!

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Filed under cancer battle, clinic, DVT

“So won’t you smile for the camera…”

Lucy is wiped out today. Getting her driver’s license renewed wasn’t too bad. She did have her picture taken three times. Apparently, they have a new camera that can take an awful picture and make it even more dreadful. I have never seen a bad photo of Lucy so they were really trying hard to end that streak. Tax dollars at work, don’t you know. The post title is a lyric fragment from “Peg” by Steely Dan. I doubt the inspiration for their song came from driver’s license photos.

I doubt either us will sleep well tonight. Keep Lucy in your thoughts and prayers tomorrow.

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Happy Valentine’s Day!

A PET scan might not have been the most romantic way to spend Valentine’s Day, but battling cancer sometimes causes inconvenient lifestyle changes. The scan took almost 90 minutes overall at Lifescan Minnesota in Edina. An hour was spent for prep and the scan was about 20 or so minutes. The results will be available to Dr. Boente tomorrow afternoon.

Lucy had a bit of an upset stomach today. We’re both apprehensive about Thursday’s appointment. Lucy has had a series of set backs since November. Her CA125 level has been slowly increasing which necessitated stopping the Taxol/Avastin treatments. The waiting is the hard part.

For the positive news of the day, she did get the latest Coumadin dosing for the upcoming week. She is on a three day cycle of 5 mg, 5 mg then 2.5 mg until next week’s blood test. We did not get her hemoglobin level in the voice mail message, but there was no mention of a transfusion.

Tomorrow will be a test of how well Lucy can maneuver a walker. I’ll be taking her to the Bloomington Deputy Registrar’s office to get her driver’s license renewed. Maybe she’ll feel up to a belated Valentine’s Day lunch or dinner. I did pick up some carnations for her tonight. She likes carnations because they last a long time.

We hope you had a wonderful Valentine’s Day. Take a moment to think of the people who love you and remember how lucky you are to have them in your life.

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One person’s curse is another person’s blessing

We have a number of friends who are not fond of our mild (thus far) winter. The ice isn’t thick enough on many lakes and rivers to skate on much less drive across; several drownings and near-drownings have occurred in the past couple weeks. Brown grass is not conducive to cross country skiing. No majestic icicles, very few days of watching snow slowly blanket the ground, and no fools getting tongues stuck on frozen metal objects. Boring indeed for them.

For us, the mild winter has been a blessing. Lucy has been battling leg swelling and blood clots for several weeks and didn’t have to additionally battle snow and ice. She was on a weekly chemotherapy regimen until January, and there have been a number of medical appointments we attended on dry roads. Anyway, last year we had nearly double our seasonal snowfall and had some brutal -20°F mornings. Maybe Mother Nature was tired from last year? Today’s snowfall was little more than a dusting, but at least our neighbors could have a bonfire without burning down the neighborhood.

Lucy’s aunt and uncle, Ardelle and Dale, were here for a visit yesterday afternoon. They brought some stew Lucy’s sister Julie had made plus a couple other goodies. It was nice seeing them!

Lucy’s left leg is puffing up very slightly and she has a rash on it from the capillaries under the skin ballooning up. Her right leg is almost the same circumference as her left leg and the reddish hue is fading. The skin peeling has almost completed. She is able to walk a few steps without her walker albeit slowly and with some discomfort. Her right ankle still does not have full range of motion and may not for another few days. One of the catheters inserted into her leg was inserted in her ankle. There is still some bruising in the area which is probably the cause of her ankle stiffness. As such, driving is still out of the question for her.

The rash and swelling is not a set back. She had a lot of fluids pumped into her during her hospital stay. Now that she is moving around, those fluids are getting flushed. Lucy still is not as physically active as she was, so there will be some lymph pooling, too. She is maintaining the physical therapy exercises she was doing in the hospital and moving around the house as much as possible.

We are noticing Lucy’s energy level is decreasing and she’s puffing a little after walking around. That usually indicates her hemoglobin count is dropping. She had her blood work done for the Coumadin dosing and was told to stay the course. A Complete Blood Count (CBC) is also drawn. Since nothing was said about her hemoglobin, so we’re assuming it is above 7.5.

Today started the busy week of appointments. Her other appointments are Valentine’s Day (PET scan), Thursday (oncologist and hopefully a treatment) and Friday (hematologist). At some point she needs to renew her driver’s license. That might be Wednesday.

Enjoy your evening and thanks for your support!

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